Javafreak' s Huntington's Disease Info Resource Page

Please note that These pages are to help you to learn more about the many illnesses,

I am not an expert, medical questions should be directed to your personal health care provider.

Thank You!

Links to H.D. Sites & Personal Stories & Poems.

[ Home | Al1 Al  2 |Al  3 | Lupus | Artwork  | Brenden | Timothy | John | Ham Radio | Pets | More Art & Vacation Pics ]

Brenden is just one of the many faces of this horrible disease.  Brenden, this page is dedicated to you.  I Love You 

Brenden Passed Away January 22 2005 a ten year battle but lost he was only 19

and less than 60 pounds when he died. I miss him so much, he fought to live, but no longer he suffers in such horrible pain.

L-R, Brenden, older sister
Justine & Step-Brother Brian.

I Dedicate this Page to My Son Brenden, who had but died of J.H.D. plus those kids who have Juvenile Huntingtons as well as Adults with Huntingtons Disease.  Brenden, My Beautiful Son, You will always have My Heart & Love For as Long as I am allowed to live. You are my only son and so young,  it is hard for me to realize that you would have been 20 years old the 16th of March. Brenden I hope you know how much I Love You, and how hard it will be for be to let you go.  But knowing you will be up with God in his loving arms, makes it just a bit easier, But I will still miss you and my heart will ache to touch you, hold you, kiss your little face and tell you How very Much I Love You.  Love Always, Mom.


Genetic Counseling Program
Harold N. Bass, M.S., M.D.
Medical Director
Dr. Bass received a M.S. degree in pharmacology and an M.D. from the University of Chicago. He was a pediatric resident and a fellow in genetics at Children's Memorial Hospital/Northwestern University. He is a diplomate of the American Board of Medical Genetics and the American Board of Pediatrics. He is Director of Genetics Services at Kaiser-Permanente of Southern California, and Clinical Professor of Pediatrics in the Division of Medical Genetics, University of California Los Angeles.

MEMBERS OF THE GENETIC COUNSELING INTERDEPARTMENTAL PROGRAM COMMITTEE.

Harold N. Bass, M.D.
Diplomate, American Board of Pediatrics, Diplomate, American Board of Medical Genetics
Kaiser Permanente Medical Group.
13652 Cantara St, South 1Building,  Panorama City, California.  91402-5497  Appts:  1-(888) 778-5000

For Other Genetic Doctors go to this link  http://www.csun.edu/~hcbio033/faculty.html


Huntington's Disease  Links

 

http://www.stanford.edu/group/hopes/basics/juvenile/e1.html
 
http://hdlighthouse.org/abouthd/juvenile/updates/0031juvenile.shtml
 
http://www.nlm.nih.gov/medlineplus/huntingtonsdisease.html
 
http://dir.yahoo.com/Health/Diseases_and_Conditions/Huntington_s_Disease/

 

Information on Huntington's Disease

HDSA Western Pennsylvania Chapter  http://www.hdsa.org/site/PageServer

HDSA Northern California Chapter  http://www.lm.com/~mccarren/n_ca 

Kansas University Medical Center  http://www.kumc.edu/hospital/huntingtons/

German HD Help  www.dhh-ev.de

Index of National Health Council Members Website http://neuro-www.mgh.harvard.edu/forum

 


Family Support Groups

HDSA/LA sponsors seven support groups throughout the region. These groups provide contact with other HD families, mutual support and a chance to share experiences and learn to cope with daily life for HD affected and at-risk individuals and their family caregivers. For information on the group nearest you, contact:

In the Los Angeles area, call the HDSA Help line at 888-4-HDSALA (3 groups available)

In the Orange County area, call the Help line or the Orange Caregiver Resource Center at 800-543-8312 or 714-680-0122

Residents of the San Bernardino/Riverside area may contact the Help line or the Inland Caregiver Resource Center at 800-675-6694 or 909-387-9440

Western Ventura County residents should contact either the Help line or the Coast Caregiver Resource Center at 800-443-1236 or 805-967-0220

Interested persons in Eastern Ventura County may call the Help line or the Coast Caregiver Resource Center representative at 800-443-1236 or 805- 445-1181

 


  Please enter one or more search terms in the box below

      advanced search - help

 

Thanks for poping in to my Favorite Links Page. I Hope you found what you were Searching for.

 Click on this E-mail link and write to me. Thank you

It may be a while in responses to your mail, Please note that These pages are to help you to learn more about the many illnesses, I am not an expert, medical questions should be directed to your personal health care provider.  Thank You!

Copyright of Micki All rights reserved